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Autism & Neurodiversity Podcast

77. Staying Curious with Jason

Staying curious may be one of the essential ingredients to empathy and our ability to connect with the young people we parent and mentor.

One of the goals of NDM or Neuro-developmental Mentoring,™️ the approach we developed and teach, is to shift our focus from trying to fix a problem to a focus on mentoring development.

To be an effective mentor you you can’t fake curiosity. There are nuances to utilizing curiosity effectively. 

77. Staying Curious with Jason

What You'll Learn from this Episode:

  • Why curiosity is such a valuable tool.
  • What belief is useful for curiosity.
  • Why NDM (Neuro-developmental Mentoring™️) focuses on a shift from fixing problems to mentoring development.
  • What you can’t fake when it comes to curiosity.
  • What may be keeping us from being curious

Listen to the Full Episode:

[00:03] Jason: Welcome to the Autism and Neurodiversity podcast.

[00:06] Debbie: We’re here to bring you helpful information from leading experts and give you effective tools and support. I’m Jason Grygla, a licensed counselor and founder of Techie for Life, a specialized mentoring program for neurodiverse young adults.

[00:19] Jason: And I’m Debbie Grygla, a certified life coach. And maybe most importantly, we’re also parents to our own atypical Young Adults.

[00:30]

Hello, friends. I am Jason Grygla. I’m here with you today on the Autism and Neurodiversity podcast. Today it’s just going to be me. I just returned from a conference in California. I’ve probably been going to conferences for over 20 years. I would say probably an average of three conferences a year, seven to ten presentations per conference. That’s a lot of presentations. 

And I just got back from one in California. It was the Young Adult Transition Association, or YATA. And most conferences I come away with a few things that were gems. The speaker said something a little bit new, but probably things that are things I already know or understand and things that I think I wouldn’t do it that way. And so I learned a lot from others based on what they do and what they don’t do. 

And once in a while I come away just so excited about a principle. And it happened this time, and the presenters talked about something that I think I’ve heard, but it never clicked for me before. I don’t know if you’ve ever had that experience, but the topic was staying curious, and I want to talk about that today. 

Let me back up when we go from parenting into a mentoring or developmental priority approach, where we specifically and intentionally go from trying to fix a problem to trying to help someone develop. And that’s kind of my quote for the day in general, not necessarily related to this topic, is that our goal isn’t to go fix problems, and when we get into the problem fixing mode, we’re in trouble. And if we remain in our mentor mode, then we are focused on development, not fixing specific problems. 

Anyway, our mentality changes from a list of tell me what we have to do, should do or not to do into how to be and when we’re trying to focus on how to be, our list, our checklist changes, and it looks like be kind, be charitable, be empathetic. And I want to add to that list of being curious. It sounds fine. 

One of the problems with it is we typically hear the word curious in terms of the cat, and that curiosity is bad. When I talk about that, I watch our cats out in our two acre property with lots of trees and right next to a creek, we have lots of foxes, wolves, owls, hawks, even some eagles, mountain lions once in a while, and coyotes. And our cats typically survive an average of twelve to 18 months. Some of them don’t make it very long. We don’t keep them indoors because they want to go outside. And I think that’s great and they help us keep our mice and snake and album population down. 

But those cats, if they’re curious, they’ll sit and watch behind a tree for any movement for hours and they’re curious beyond reality. They’re curious to an extreme and they’ll walk way around something to get a better view of it so that they can be curious and figure something out. And maybe they’re natural hunters and that’s what it is. 

But what makes them survive a lot longer is our cats that are really curious, aware, they’re focused on details, they’re really trying to gather as much information as they can, unlike a dog that wants to just bound in clumsily and excited and happy to be there and have fun and cause all kinds of problems. But I love dogs more than cats. I really do. 

In this case, curiosity didn’t kill the cat. It probably saved their lives because they watched and they were careful and they were gathering information. 

So when we are curious, it’s a way of being, it’s a way of focusing, it’s a way of approaching, it’s intentional and it creates a partnering relationship that there isn’t a power differential. It creates an immediate connection and attachment. 

And you know that we are very much focused and that we prioritize relationships of influence as the best method or goal of being effective in mentoring and helping people to develop and grow. So when we’re curious, we want to gather information and we are naturally asking questions and intent on understanding what’s behind behaviors. 

One of the things we learn in the therapy world is that all actions make sense. And when you think about that and you think about a neurodivergent person struggling and you think that their actions aren’t logical at all because clearly they’re not working or they’re painful or they keep someone stuck, all of their actions make sense if you understand why they’re doing what they’re doing. 

And really good mentoring and being an agent for change requires a lot of good questions and curiosity. But you can’t do it fake. You can’t just ask a ton of questions. The most obvious example of that would be how did you do that? As if you’re asking a question when you’re not. You’re really condemning their behavior and judging what they’ve done. And it’s clearly sarcastic and it puts up an immediate wall between you and the person you’re talking to unless there’s a joke behind it and you’ve done enough. Really good curiosity and information gathering, that that’s more of a lightning of the situation. 

So one of the quotes that I love Albert Einstein for a minute, he was big on curiosity and I didn’t realize that until this presentation yesterday. He said, the important thing is not to stop questioning. Curiosity has its own reason for existing. One cannot help but be in awe when one contemplates the mysteries of eternity of life, the marvelous structure of reality. It is enough if one tries to comprehend only a little of this mystery every day. And the second quote about it that I really love is he said, I have no special talents. And this is Albert Einstein, right?

 I am only passionately curious. I love that it doesn’t matter how smart you are, if you don’t care and you’re not curious, it doesn’t matter how charismatic you are, in the end, you’re not going to influence people except for by being a celebrity maybe without any engagement whatsoever. And so people want to follow them and be like them without any actual care. And the danger in that is that role models have no idea what people situations are, what their needs are, what their strengths and weaknesses are, what their goals. And so it’s a very one sided, one way mentoring because there’s no real relationship. It’s all about gallow very narrow influence. There’s no curiosity from the celebrity to their people. But when we ever do see somebody that’s a celebrity take a personal interest in somebody, we just on over that. We love it because there’s a part of us that knows that the personal touch, the personal relationship is such a great thing. 

When we talk about curiosity, there’s also a couple of things that I’d like to point out. One is that here’s a quote by Eric Chemstrom and he actually wrote a book called Wild Curiosity. Let me just read the quote and then we’ll talk about it. Curiosity may be the very thing that moves us toward a more just world. The alternative and in curious world may be one where prejudice and misery reign. 

Curiosity may be one of the essential ingredients to empathy. Say that again. Curiosity may be one of the essential ingredients to empathy, something that we can all agree the world could use a little more of right now. So when we’re curious, what happens in the situation if we’re one on one with someone or a small group of people, is that we immediately connect and attach and walls come down. And the power difference showing the power struggle from I’m above you to where equals immediately happen. And the cool thing about that situation is that being curious is an immediate tool that allows us to help the person emotionally regulate, get out of their lower brain, get out of their fight or flight mode, and get into a thoughtful introspective I’m safe and cared about. I’m not alone. 

And when we model curiosity for someone else, it immediately teaches them how to interact and how to be mentored and how to attach. And after a while, they just get used to coming and saying, hey, they don’t say this, but they say, hey, I know you’re curious about me because you care and I know that you want to partner with me. 

So I would like to speak to you about what’s going on, how many times have we gotten into just a mindset of we’re going to fix that problem, we’re going to change that behavior. I know what needs to happen, so I’m going to dictate it. Or when we see a situation, we think, oh, there they go again, we know what that is. Or we meet a new person for the first time and they’re struggling and we put them in a box and say, I already know who they are. They’re just like so and so, or this is just like last year and I can’t do it anymore. How can they not learn? Every one of those statements was absolutely narcissistic and selfish on my part and it’s a one way thinking and dictatorial anti attachment approach. 

And so curiosity here’s, that solves that. I love that being curious as a way of being and not what to do, because how to be is so much better than what to do now, asking questions is what to do if you’re genuinely curious. But you can’t ask questions without actually being curious and not come across as patronizing. Anyone these days smells out someone who is patronizing or insincere just doesn’t work. It has to be real or it doesn’t work.

Here’s another quote when the relationship is central to our work, it demands ongoing curiosity. One of the presenters asked the crowd, what hinders you from being curious? And here are some of the responses from an audience that was actually very intelligent, very educated, good people. All every one of them was there for the right reasons and want to be a benefit to those that they help and serve and work with. 

And so here are some of their answers: I’m afraid to be curious because what if I don’t know the answer? What if I don’t know how to fix it? I’m afraid to be curious because what if I open up a can of worms and I can’t put it back and I don’t have the time or the energy to do that? And so it’s hard to be curious and I may not want to hear the answer. What if I don’t want to be curious in my relationship with my children or my spouse or a loved one because I don’t want to hear that I’ve hurt them or I don’t want to own any of my own mistakes and it would be too vulnerable? What if I don’t have the emotional bandwidth or the emotional units to keep being curious all the time? I just can’t care about everything all the time and it becomes exhausting.

All of those are very valid responses. And I think if you’re aware of why you’re not being curious and you own it by saying it and just speaking it out loud, you can be curious and still have all the benefits without having to hurt yourself or take away from your own mental health, emotional health, stability. 

All you have to say is I really want to hear what you’re saying and I want to know what’s going on. I just want you to know I don’t know if I can fix it, but I would love to listen. I would love to understand about I really want to talk to you about this. This is really important and I would love to do that tomorrow over lunch, or can we do that on Sunday when I have enough time to handle this in a way that would be beneficial to how important this is to me? Sometimes if someone is really a mess and you know you can’t dive that deeper or it will actually send them back into ice, I think that’s a wise move not to be too curious. 

Sometimes people who are helpful but also naive dive in and open up pain as a therapist or trained not to open up too many layers of emotional pain or understanding, because it actually might stable the person, which takes me into someone who’s in a really pricey situation. They just need to talk. They don’t necessarily need cures, answers or solutions, and they don’t need you to fix it. We know that. 

But if you want to be helpful, it is so important to have them say, but here’s my problem. And you might have been right about the answer all along, about what they need or about what to do. And if you jump into mentoring mode, fixit mode, without letting them speak first, you’re not really mentoring because the goal isn’t to fix the problem, it’s to develop and to help them to develop. And by asking them what’s going on, they process a lot of their own information. It requires us to be in our own good place, standing on our own solid ground, enough to know that it’s helpful for them to just talk. 

So this way of being curious, it was such an eye opening thing to me. There’s another quote that I really liked to be more empathetic, we need to be curious about other people. We need to listen, be present, and most of all, be curious about other people, their experiences, motivation and desires. If there’s something to remember so that you can be a better mentor, parent, feature, therapist, psychologist, it’s ought to be curious, not memorize what questions to ask, but it’s how to be, which is so much deeper and better and not shallow. The times that I have stopped and been curious with my students, I almost always get down on their level. So if they’re on the carpet, I get down on the carpet. If they’re standing, but they’re in a defensive posture, I sit down and take a one down approach so that they will see that I’m comfortable and I can help them regulate their offensive, angry stance a little bit. And sometimes I’ll take the time to offer them something to play with fidget wise, or something to snack on, so that it fluffs off some of that overt emotion and anger. Sometimes I’ll find a way to touch them very quickly or friendly if it’s appropriate and only when I know it’s not going to trigger them and make it worse so that it brings down their walls and other tricks you can do that are real and they work. There’s something that an empathetic curious person does naturally. 

But I thought I’d point them out because it’s good to have them on your mind if you want to be that person. So if you’re not good at being curious, it’s okay to practice. It’s a muscle, it’s a way of being, it’s a skill set, it’s a characteristic and equality and just like anything else we do, if we practice it, we get really good at it if it comes across as cold. And this is one of the problems that Freud had when he did psychotherapy with people is he was asking intellectual questions, just intellectually or in the brain only. And there was no relationship, there was no empathy because Freud believed that getting involved in their process was unethical. 

We believe that the relationship actually is the most important piece. Not what is said, not the words that are used, not the advice that’s given. But how you are in the interaction is way more important than how expert you are and how big of a word you can use. 

So the good news is that anyone can be an amazing mentor. You don’t have to have a PhD. You have to have a heart if you want to be genuinely curious and care. 

One quick warning if you’ve ever met somebody that was too intimate too quickly and I’ve been accused of that and I’ve gotten that feedback that I get too close too quickly sometimes that’s someone who’s trying to be curious to meet their own needs. 

And if you want to be curious so that you can be enmeshed with someone because you like to rub up against an emotionally charged situation. If you’re like an intimacy junkie, which I think a lot of really naturally curious and empathic people are, they have to learn where that balance is. So be aware of being too curious. Or if curiosity is there to meet your emotional needs, you’re not in a good head space or that person is not in a good head space. 

So make sure that your curiosity is about being there for them and that will be helpful. Well, thanks for listening today. I got really excited, which is not something that happens very often at these conferences. There is a lot of information starting to come out about the concept of curiosity and I love it because it’s a way of being and it builds in a spot in development that is so effective in how to be as a mentor. Thank you for listening and we will visit with you again soon. Bye.

[13:07] Debbie: Thanks for joining us on this episode of Autism and Neurodiversity with Jason and Debbie. If you want to learn more about our work, come visit us at jasondebbie.com.

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[00:03] Jason: Welcome to the Autism and Neurodiversity podcast.

[00:06] Debbie: We’re here to bring you helpful information from leading experts and give you effective tools and support. I’m Jason Grygla, a licensed counselor and founder of Techie for Life, a specialized mentoring program for neurodiverse young adults.

[00:19] Jason: And I’m Debbie Grygla, a certified life coach. And maybe most importantly, we’re also parents to our own atypical Young Adults.

[00:30] Jason:

Hello, welcome to the Autism and Neurodiversity podcast. I’m Jason Grygla, and I’d like to talk to you today about something that is fairly common, that most of you won’t know, that you need to traverse as your young adult nears the age of 18. 

 

So what happens is we know that their timelines are typically different, lower, delayed, and that they typically don’t hit their stride or catch up to their level of adulting until their mid 20s, sometimes earlier, sometimes later. And so they have time on their side, which isn’t necessarily comforting to parents, because that just means longer. And I want you to know that that’s what you’re up against so that you can pace yourself now. 

 

And because they’re nearing the age of 18, we kind of assume, and their teachers assume, and their therapists assume, and society at large assumes, that once they hit 18, they have a right to make all of their own decisions. 

 

And they’re correct unless you get power of attorney because you have them sign a paper that says that they want you to be their guardian, or you can get a judge to order it even against your loved ones wishes, and you take control over their situation. There are benefits to that. I think it can protect them financially if you have guardianship so that they can’t sign contracts, including credit cards and purchasing things. 

 

And I had one parent whose child went out and went to a used car lot, spent way too much money on a car, and gave them the $3,000 cash that he had as a down payment, and it was a piece of junk. And we were able to go back in and say, we knew something was different about this young man when he came in, and you still did what you did. And so we were able to get that deal canceled and returned the car, which was a huge relief to even the young adult that purchased the vehicle. 

 

But as you know, here’s the problem. You’re still dealing with someone who might be making the decisions of a young teen, even an adolescent in some ways, and they’re not thinking straight. They’re not thinking about the future. They’re not seeing all the consequences. They haven’t had much life experience. They’re not savvy. They can be taken advantage of.

 

 And because they’re 18, one, society expects them to make their own decisions, and two, they expect to make their own decisions. And with all teenagers and neurodiverse or neurodivergent, young adults aren’t any different. They want to make adult decisions, whether they’re ready for it, or not. Ready or not, here I come. 

 

And developmentally speaking, teenagers brains that are so underdeveloped and have spread themselves out to grow way too fast and their depth of thinking and neural pathways has not put up through their sprawling brain growth in their teenage years. 

 

They demand to be treated like adults, and they haven’t earned it, and it’s okay. And if we give them privileges and responsibilities and we trust them to become capable of those things, there’s a pretty good balance there between I’m not going to let them die if I really know that they’re not safe to drive. 

 

At the same time. None of us were safe to drive, but we thought we were, and we had to do that balance between how do I become safe to drive without driving or waiting until I’m safe to drive before I drive and then never getting to drive as an example. 

 

So I think most teenagers need to be trusted as adults and given the opportunity to fail and practice as long as it doesn’t destroy their lives or destroy the lives of others, including us. 

 

As the parents enter a disability. And I don’t want to spend any time talking about whether their neurodivergent brain is a disability or not. All I know is that most of the ability of our loved one who has a different type of brain, most of them struggle with mature, safe, healthy decisions, and they can get into more trouble than someone else their age because of this magical number of 18 that we set in society a long time ago. 

 

And the reality is, the statistics are changing for when students or when our children are leaving the home. They’re leaving older and older. They’re living at home longer. They’re graduating from college longer than four years. They’re getting married older. They’re having children older. They’re finding their career path older. That age of 18 socially no longer fits. It’s probably around 21 now, from a generation or two ago. 

 

I was working at age 14. I don’t know many kids these days that are working at 14. I was bussing tables in the summer. I had two jobs. I was doing a paper route, and I was bussing tables at a Mexican food restaurant even at age 14. And maybe that’s not that normal, but there was a lot of people I knew that were doing similar things.

 

So having said that, here we are as parents now with our neurodivergent loved one. They turn 18, they’re saying, Screw you, I’m going to do what I want, or you can’t tell me what I can and can’t do. But they’re still acting like a 14, 15 year old. My first advice in that situation is, one, you need to protect them from themselves. If they were 15 years old, you would protect them from themselves if they’re 20, but they act like they’re 14, you protect them as if they were 14. And if that makes you their enemy. You’ll have to balance that, because if you lose the ability to influence their lives completely, and then they really get destroyed, taken advantage of, and that’s not helpful either. 

 

But when it comes to you advocating for anything outside of the home, you go in and advocate for your 14 year old developmental child who is actually chronologically older or old enough to make their own decisions. I have never actually seen somebody push back really hard on a proactive parent unless they were legally mandated to, like, if they go to the Er. 

 

But even in the Er, I’ve been really surprised if I go with someone and I say, hey, I’m here with so and so, they’re on the spectrum, or they have a neurodivergent brain that is developmentally delayed, and I’m here to mentor them, or I’m their therapist, or I’m their friend, I’ve never seen a doctor say, I can’t talk to you at all. What I have seen them do is lean over to the student who is maybe the client, say, hey, this is so and so. It’s cool if they’re here, right? And most of them get it because they don’t want to be dealing with somebody who doesn’t have their developmental capacity in place. 

 

Some doctors aren’t that way. Some are really stuck on that age 18, and I would advocate and say they have a disability. If you don’t allow me to be a part of this, you’re going to do poor treatment. You’re not going to get the results you want. It’s way more likely that you’ll be liable for problems and errors if I’m not a part of it. But it’s up to you. So advocate and let them know that it’s in their best interest to let you come and be a part of it. 

 

It can get tricky. I know that for my son Lee, we would go to IAP meetings and they would speak to him as if he was 18, when he was 18, and give him responsibilities and choices about his future, that there was just no way he should have been thinking about nothing. He should have been thinking about it. He should not have been making those decisions. They wanted him to graduate early, for example. We’re like, no, keep him in the nest as long as we can because the services cliff comes if he graduates early. So we got him on the five year plan for high school, which was really good for him. 

 

So I think it’s wise as much as you can to not get intimidated by this age 18. They get to make their own decisions, and I have to just keep supporting them, financially, emotionally, physically. I have to feed them, do their laundry, and do everything for them, but they get to act like they’re adults who can’t provide for themselves. I don’t think that’s good for yourself, and it’s not good for your loved ones. 

 

So as much as you can advocate as a parent until they are developmentally ready to advocate for themselves as a general rule. And I wouldn’t be shy about it. I was apprehensive. I was a little squeamish to push that. And now I look back and I think I was afraid because I didn’t know better. 

 

And what I knew my son needed was different than what my son thought he needed at 18. It’s like a 14 year old saying, I don’t need high school, so I’m dropping out. So I kind of know better. And not because I’m all about just getting the diploma, but I need him to have that development and that experience, and I need him out of the house, and he needs those things too. But I needed it, right? And it’s easy for them to make decisions that are going to cause us as parents a lot of crises. 

 

So I want to advocate for you to advocate for your child, and don’t be afraid to do that, even if they’re 18 or older. And I want you to go in and just be confident about, I’m here because my loved one needs me here. And if you’re confident and it just feels like it’s what you do and it’s natural, most people don’t even question it. They’re just like, oh, you must be here and it must be okay, and then you go for it. 

 

So that’s my advice tonight about you being able to advocate. And I want to finish with this thought. It is important to keep a bridge as much as possible with your loved one as a parent because we want to keep a relationship of influence. 

 

And if they see you as the parent and it keeps them as the child, they’re going to resent you. And that’s hard. Parenting is hard. They can be mad at you, and sometimes that’s the best you can get, but other times you can help them understand. Look, I love you and I didn’t want to have to do that. I really felt like it was the right thing for you, and I’m sorry it’s so hard. I wish you were in a place where you could make your own decisions and in a lot of ways excuse me, a lot of ways you are able to make your own decisions, but just not today. 

 

And maybe that’s why you need to make let them make a lot of their own decisions whenever they can. So that when you finally do say, nobody I’m going to help intervene here. Maybe they won’t fight it as much, or maybe they will, but our job is to give them what they need, not what they want, and to do for them what they need, not what they want. That is a hard balance, and it can keep you up at night wondering, am I doing the right thing?

 

 And I don’t know the answer to that. Every situation in every young adult or teen is different in every developmental disability or every risk or danger is different. Some parents would never allow their child to get a motorized scooter to scoot around on in town to learn how to drive, and others would be like, yeah, let’s get them practicing driving that right away. There’s a safety risk involved, and you’ll have to make those decisions on your own. 

 

But I do know that there’s no such thing as a risk free development process. The older they get, the riskier it gets. And if we don’t prepare them for life outside the nest, then we push them out of the nest, and they fall to the ground and get eaten by the snakes. So we want their wings to be flapping and stretching and growing, even if it means they do it poorly or they choose a different choice. 

 

Sometimes that’s more important than choosing the right choices, just them practicing choosing while they’re still at home with you or in a program or with a loved one. So advocate away, and hopefully you can have enough positives to keep that relationship of influence with your loved one if you have to cross what they are wanting and what they’re thinking. But it’s your job to do what they need. 

 

So good luck and keep up the good work. It is good work, and in the end, it’s worth it, but not always in the moment. So God bless you, and I hope you have a great day. Thanks. Bye.

[13:07] Debbie: Thanks for joining us on this episode of Autism and Neurodiversity with Jason and Debbie. If you want to learn more about our work, come visit us at jasondebbie.com.

Autism & Neurodiversity Podcast

[00:03] Jason: Welcome to the Autism and Neurodiversity podcast.

[00:06] Debbie: We’re here to bring you helpful information from leading experts and give you effective tools and support. I’m Jason Grygla, a licensed counselor and founder of Techie for Life, a specialized mentoring program for neurodiverse young adults.

[00:19] Jason: And I’m Debbie Grygla, a certified life coach. And maybe most importantly, we’re also parents to our own atypical Young Adults.

[00:30] Jason:

Hello, welcome to the Autism and Neurodiversity podcast. I’m Jason Grygla, and I’d like to talk to you today about something that is fairly common, that most of you won’t know, that you need to traverse as your young adult nears the age of 18. 

 

So what happens is we know that their timelines are typically different, lower, delayed, and that they typically don’t hit their stride or catch up to their level of adulting until their mid 20s, sometimes earlier, sometimes later. And so they have time on their side, which isn’t necessarily comforting to parents, because that just means longer. And I want you to know that that’s what you’re up against so that you can pace yourself now. 

 

And because they’re nearing the age of 18, we kind of assume, and their teachers assume, and their therapists assume, and society at large assumes, that once they hit 18, they have a right to make all of their own decisions. 

 

And they’re correct unless you get power of attorney because you have them sign a paper that says that they want you to be their guardian, or you can get a judge to order it even against your loved ones wishes, and you take control over their situation. There are benefits to that. I think it can protect them financially if you have guardianship so that they can’t sign contracts, including credit cards and purchasing things. 

 

And I had one parent whose child went out and went to a used car lot, spent way too much money on a car, and gave them the $3,000 cash that he had as a down payment, and it was a piece of junk. And we were able to go back in and say, we knew something was different about this young man when he came in, and you still did what you did. And so we were able to get that deal canceled and returned the car, which was a huge relief to even the young adult that purchased the vehicle. 

 

But as you know, here’s the problem. You’re still dealing with someone who might be making the decisions of a young teen, even an adolescent in some ways, and they’re not thinking straight. They’re not thinking about the future. They’re not seeing all the consequences. They haven’t had much life experience. They’re not savvy. They can be taken advantage of.

 

 And because they’re 18, one, society expects them to make their own decisions, and two, they expect to make their own decisions. And with all teenagers and neurodiverse or neurodivergent, young adults aren’t any different. They want to make adult decisions, whether they’re ready for it, or not. Ready or not, here I come. 

 

And developmentally speaking, teenagers brains that are so underdeveloped and have spread themselves out to grow way too fast and their depth of thinking and neural pathways has not put up through their sprawling brain growth in their teenage years. 

 

They demand to be treated like adults, and they haven’t earned it, and it’s okay. And if we give them privileges and responsibilities and we trust them to become capable of those things, there’s a pretty good balance there between I’m not going to let them die if I really know that they’re not safe to drive. 

 

At the same time. None of us were safe to drive, but we thought we were, and we had to do that balance between how do I become safe to drive without driving or waiting until I’m safe to drive before I drive and then never getting to drive as an example. 

 

So I think most teenagers need to be trusted as adults and given the opportunity to fail and practice as long as it doesn’t destroy their lives or destroy the lives of others, including us. 

 

As the parents enter a disability. And I don’t want to spend any time talking about whether their neurodivergent brain is a disability or not. All I know is that most of the ability of our loved one who has a different type of brain, most of them struggle with mature, safe, healthy decisions, and they can get into more trouble than someone else their age because of this magical number of 18 that we set in society a long time ago. 

 

And the reality is, the statistics are changing for when students or when our children are leaving the home. They’re leaving older and older. They’re living at home longer. They’re graduating from college longer than four years. They’re getting married older. They’re having children older. They’re finding their career path older. That age of 18 socially no longer fits. It’s probably around 21 now, from a generation or two ago. 

 

I was working at age 14. I don’t know many kids these days that are working at 14. I was bussing tables in the summer. I had two jobs. I was doing a paper route, and I was bussing tables at a Mexican food restaurant even at age 14. And maybe that’s not that normal, but there was a lot of people I knew that were doing similar things.

 

So having said that, here we are as parents now with our neurodivergent loved one. They turn 18, they’re saying, Screw you, I’m going to do what I want, or you can’t tell me what I can and can’t do. But they’re still acting like a 14, 15 year old. My first advice in that situation is, one, you need to protect them from themselves. If they were 15 years old, you would protect them from themselves if they’re 20, but they act like they’re 14, you protect them as if they were 14. And if that makes you their enemy. You’ll have to balance that, because if you lose the ability to influence their lives completely, and then they really get destroyed, taken advantage of, and that’s not helpful either. 

 

But when it comes to you advocating for anything outside of the home, you go in and advocate for your 14 year old developmental child who is actually chronologically older or old enough to make their own decisions. I have never actually seen somebody push back really hard on a proactive parent unless they were legally mandated to, like, if they go to the Er. 

 

But even in the Er, I’ve been really surprised if I go with someone and I say, hey, I’m here with so and so, they’re on the spectrum, or they have a neurodivergent brain that is developmentally delayed, and I’m here to mentor them, or I’m their therapist, or I’m their friend, I’ve never seen a doctor say, I can’t talk to you at all. What I have seen them do is lean over to the student who is maybe the client, say, hey, this is so and so. It’s cool if they’re here, right? And most of them get it because they don’t want to be dealing with somebody who doesn’t have their developmental capacity in place. 

 

Some doctors aren’t that way. Some are really stuck on that age 18, and I would advocate and say they have a disability. If you don’t allow me to be a part of this, you’re going to do poor treatment. You’re not going to get the results you want. It’s way more likely that you’ll be liable for problems and errors if I’m not a part of it. But it’s up to you. So advocate and let them know that it’s in their best interest to let you come and be a part of it. 

 

It can get tricky. I know that for my son Lee, we would go to IAP meetings and they would speak to him as if he was 18, when he was 18, and give him responsibilities and choices about his future, that there was just no way he should have been thinking about nothing. He should have been thinking about it. He should not have been making those decisions. They wanted him to graduate early, for example. We’re like, no, keep him in the nest as long as we can because the services cliff comes if he graduates early. So we got him on the five year plan for high school, which was really good for him. 

 

So I think it’s wise as much as you can to not get intimidated by this age 18. They get to make their own decisions, and I have to just keep supporting them, financially, emotionally, physically. I have to feed them, do their laundry, and do everything for them, but they get to act like they’re adults who can’t provide for themselves. I don’t think that’s good for yourself, and it’s not good for your loved ones. 

 

So as much as you can advocate as a parent until they are developmentally ready to advocate for themselves as a general rule. And I wouldn’t be shy about it. I was apprehensive. I was a little squeamish to push that. And now I look back and I think I was afraid because I didn’t know better. 

 

And what I knew my son needed was different than what my son thought he needed at 18. It’s like a 14 year old saying, I don’t need high school, so I’m dropping out. So I kind of know better. And not because I’m all about just getting the diploma, but I need him to have that development and that experience, and I need him out of the house, and he needs those things too. But I needed it, right? And it’s easy for them to make decisions that are going to cause us as parents a lot of crises. 

 

So I want to advocate for you to advocate for your child, and don’t be afraid to do that, even if they’re 18 or older. And I want you to go in and just be confident about, I’m here because my loved one needs me here. And if you’re confident and it just feels like it’s what you do and it’s natural, most people don’t even question it. They’re just like, oh, you must be here and it must be okay, and then you go for it. 

 

So that’s my advice tonight about you being able to advocate. And I want to finish with this thought. It is important to keep a bridge as much as possible with your loved one as a parent because we want to keep a relationship of influence. 

 

And if they see you as the parent and it keeps them as the child, they’re going to resent you. And that’s hard. Parenting is hard. They can be mad at you, and sometimes that’s the best you can get, but other times you can help them understand. Look, I love you and I didn’t want to have to do that. I really felt like it was the right thing for you, and I’m sorry it’s so hard. I wish you were in a place where you could make your own decisions and in a lot of ways excuse me, a lot of ways you are able to make your own decisions, but just not today. 

 

And maybe that’s why you need to make let them make a lot of their own decisions whenever they can. So that when you finally do say, nobody I’m going to help intervene here. Maybe they won’t fight it as much, or maybe they will, but our job is to give them what they need, not what they want, and to do for them what they need, not what they want. That is a hard balance, and it can keep you up at night wondering, am I doing the right thing?

 

 And I don’t know the answer to that. Every situation in every young adult or teen is different in every developmental disability or every risk or danger is different. Some parents would never allow their child to get a motorized scooter to scoot around on in town to learn how to drive, and others would be like, yeah, let’s get them practicing driving that right away. There’s a safety risk involved, and you’ll have to make those decisions on your own. 

 

But I do know that there’s no such thing as a risk free development process. The older they get, the riskier it gets. And if we don’t prepare them for life outside the nest, then we push them out of the nest, and they fall to the ground and get eaten by the snakes. So we want their wings to be flapping and stretching and growing, even if it means they do it poorly or they choose a different choice. 

 

Sometimes that’s more important than choosing the right choices, just them practicing choosing while they’re still at home with you or in a program or with a loved one. So advocate away, and hopefully you can have enough positives to keep that relationship of influence with your loved one if you have to cross what they are wanting and what they’re thinking. But it’s your job to do what they need. 

 

So good luck and keep up the good work. It is good work, and in the end, it’s worth it, but not always in the moment. So God bless you, and I hope you have a great day. Thanks. Bye.

[13:07] Debbie: Thanks for joining us on this episode of Autism and Neurodiversity with Jason and Debbie. If you want to learn more about our work, come visit us at jasondebbie.com.

77. Staying Curious with Jason

If you never intentionally make the shift from the parent role to the partner role, it is highly likely the neurodiverse young adult you’re trying to help and support will struggle to shift out of the child role.

In this episode, Jason explains what transactional analysis is and makes recommendations for how to better support their transition into adulthood.

77. Staying Curious with Jason

What You'll Learn from this Episode:

  • Why the parent/child relationship needs to shift if you want to better support your neurodivergent (ND) young adult in their adulting process.
  • How you can apply the concept of transactional analysis to intentionally parent your ND teen/young adult.
  • Who has to take the first step and why.
  • What can happen if you stay a parental “part of the equation” for your ND young adult.
  • Recommendations for supporting your ND young adult’s healthy autonomy.

Listen to the Full Episode:

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